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Consumer and Disability Group Resources
The following consumer groups and organizations are a partial listing of online resources for information and technical assistance for a variety of disabilities and disabling conditions. (Note: The full URL addresses are <displayed> after the hyperlinks for print handout purposes.)
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ADHD/ADD <
http://mentalhelp.net/poc/center_index.php?id=3>
Information and resource links. -
ADHD_Special Needs <
http://adhd.kids.tripod.com/ >
Outside the Box provides resources for ADHD/ADD/and related learning style differences. -
American Association on Mental Retardation <
http://www.aamr.org/ >
AAMR is an interdisciplinary organization of professionals (and others) concerned about mental retardation and related disabilities. -
American Council of the Blind <
http://www.acb.org/ >
National advocacy organization for people with vision impairments. -
American Diabetes Association <
http://www.diabetes.org/home.jsp >
The web site of one of the largest diabetes advocacy/support groups in the United States. The site contains a wide variety of information and resources aimed at helping people with diabetes lead normal lives. -
American Foundation for the Blind <
http://www.afb.org/ >
National nonprofit organization devoted to serving people with visual impairment through the collection and dissemination of information, the identification and resolution of legislative issues, and education of the general public. -
Asperger Syndrome Information & Support <
http://www.udel.edu/bkirby/asperger/ >
Research, resources, chat room and message board. -
Attention Deficit Disorder Association <
http://www.add.org/ >
National ADD Association information on resources, research, support groups, etc. -
Attention Deficit Disorder Resources <
http://curry.edschool.virginia.edu/sped/projects/ose/categories/add.html
>
Compiled by Virginia Office of Special Education. -
Attention-Deficit/Hyperactivity Disorder (CHADD) <
http://www.chadd.org/ >
Children and AdultsCHADD is the national non-profit organization representing children and adults with attention-deficit/hyperactivity disorder. -
Augmentative and Alternative Communication <
http://www.isaac-online.org/select_language.html >
International Society for Augmentative and Alternative Communication (ISAAC) publications, events, resources for augmentative communication users. -
Autism <
http://www.autismwebsite.com/ >
Center for the Study of Autism provides links to autism resources. -
Autism Resources <
http://www.vaporia.com/autism/ >
Information & links on autism and Aspergers Syndrome. -
Autism Society of America <
http://www.autism-society.org/ >
Information & links on autism and Aspergers Syndrome. -
A-Z to Deafblindness <
http://www.deafblind.com/ >
Provides information and resources to the general public about deaf-blindness and the people who live with both hearing and visual impairments. -
Blind and Dyslexic Recording <
http://www.rfbd.org/ >
Recording for the Blind and Dyslexic provides textbooks, educational and reference materials to people who cannot read standard print. -
Blind and Physically Handicapped <
http://www.loc.gov/nls/ >
Library for the Blind and Physically Handicapped talking and Braille books. -
Blind Links <
http://www.seidata.com/~marriage/rblind.html >
Links to a variety of resources for people who are blind. -
Brain Injury Association <
http://www.seidata.com/~marriage/rblind.html >
Provides information on brain injury prevention, research, education, advocacy, and links. -
Brain Injury Information Network <
http://www.tbinet.org/ >
Provides resources, links, and support for people with brain injuries. -
Cerebral Palsy Info Central <
http://www.geocities.com/HotSprings/Sauna/4441/CPIC.html >
Information, resources, links. -
Cognitive Prosthetics <
http://www.brain-rehab.com/ >
Institute for Cognitive Prosthetics information on assistive technology to assist in everyday activities for individuals who have sustained brain injuries. -
Communication Aid Manufacturers Association <
http://www.aacproducts.org/ >
A not-for-profit organization of the worlds leading manufacturers of augmentative and alternative communication (AAC) software and hardware. -
Communication Disorders and Sciences <
http://www.mnsu.edu/comdis/kuster2/welcome.html >
Catalog of many types of resources and information concerning range of communication disorders. -
Davis Dyslexia Association International <
http://www.dyslexia.com/ >
Provides information, training, and provider list for learning disabilities. -
Deaf Education <
http://www.deafed.net/ >
Information, curriculum materials, instructional strategies for education of deaf students. -
Deaf Education Center <
http://clerccenter.gallaudet.edu/InfoToGo/index.html >
National DEC at Gallaudet covers wide variety of resources and information about hearing impairments in people 21 years of age and younger. -
Deaf Info Web Site <
http://www.zak.co.il/deaf-info/old/home.html >
Info and links to deaf resources. -
Deaf Resource Library <
http://www.deaflibrary.org/ >
An online collection of reference material and links intended to educate and inform people about Deaf cultures in Japan and the U.S. - Deaf-blind Program-Seattle Lighthouse for the Blind < http://www.deafblindlh.com/jobs/jobs.htm > Employment, independent living, educational services and technical assistance for people who are deaf-blind.
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Diabetes
< http://www.docguide.com/news/content.nsf/PatientResAllCateg/Diabetes?OpenDocument >
Doctors Guide to Diabetes provides latest medical news and information for patients or friends/parents of patients diagnosed with diabetes. -
Diabetes & Digestive & Kidney Diseases <
http://www.niddk.nih.gov/ >
National Institutes of Health information and resource web site. -
Diabetes and Children <
http://www.childrenwithdiabetes.com/index_cwd.htm >
The on-line community for kids, families and adults with diabetes. -
Diabetes and Public Health Resource <
http://www.cdc.gov/diabetes/index.htm >
Centers for Disease Control diabetes information, resources, and links. -
Diabetes Mall <
http://www.diabetesnet.com/ >
Web-based source of information and retail products focused exclusively on diabetes. -
Down Syndrome <
http://www.nas.com/downsyn/ >
Resources, events, FAQs, medical information, toy store. -
Down Syndrome Sites on the Internet <
http://www.ds-health.com/ds_sites.htm >
Links to Down Syndrome resources on the Internet. -
Down Syndrome Society <
http://www.ndss.org/ >
National Down Syndrome Society promotes education, research and advocacy. -
Dwarfism Resources <
http://www.dwarfism.org/ >
Wide range of resources on dwarfism, includes medical, legal, organizations - also has store, chat rooms, and listservs. -
Epilepsy Foundation <
http://www.epilepsyfoundation.org/ >
Nonprofit organization devoted to improving the quality of life for people with epilepsy and supporting the search for a cure. The site includes general information about epilepsy and resources for advocacy. -
Epilepsy Links <
http://www.siumed.edu/neuro/epilinks.html >
Links to organizations, information databases, and support groups. -
Hot Braille <
http://www.hotbraille.com/ >
Braille messaging over the Internet. -
Interpreters for the Deaf <
http://www.rid.org/ >
Registry of Interpreters for the Deaf information about interpreters for the deaf. -
LD Online <
http://www.ldonline.org/ >
A guide to learning disabilities for parents, teachers, and students. A service of The Learning Project at WETA, Washington, D.C. -
LD Resources <
http://www.ldresources.com/ >
Provides extensive list of LD resources with links. -
Learning Disabilities <
http://www.ncld.org/ >
National Center for Learning Disabilities provides information, resources, and referral services. -
Lighthouse for the Blind <
http://www.seattlelighthouse.org/ >
Seattle Lighthouse jobs, training, and vocational services for people who are blind. On-line shop. -
Matrix Research Institute <
http://www.matrixresearch.org/jsindex.html >
Focuses on the employment needs of persons with serious mental illness. -
Mental Retardation <
http://www.thearc.org/ >
The ARC, Association for Retarded Citizens, is an advocacy group focusing on mental retardation. Provides a wide variety of information and resources for its members. -
Mentally Ill <
http://www.nami.org/ >
National Alliance for the Mentally Ill Advocacy, resources, news, links for people with mental illness. -
Multiple Sclerosis Association of America <
http://www.msaa.com/ >
Information and resources to enhance the quality of life of people with multiple sclerosis, their families, and their friends. -
Multiple Sclerosis Foundation <
http://www.msfacts.org/ >
Information research link of the MS Foundation. -
Multiple Sclerosis Society <
http://www.nmss.org/ >
National MS Society provides resources, information, educational programs for people with MS. -
Muscular Dystrophy Association <
http://www.mdausa.org/ >
Wide variety of information and resources on neuromuscular disorders. -
Muscular Dystrophy Family Foundation <
http://www.mdff.org/ >
Provides services, resources, home medical equipment and adaptive devices to help people with muscular dystrophy and their family members live independent and productive lives. -
National Association of the Deaf <
http://www.nad.org/ >
Grassroots advocacy organization that seeks to safeguard the civil and accessibility rights of people with hearing impairments. -
National Federation of the Blind <
http://www.nfb.org/ >
NFB advocates for issues affecting those with visual impairments. -
Polio Connection of America <
http://www.geocities.com/w1066w/ >
Resources and links for polio survivors. -
Polio Experience Network <
http://www.polionet.org/ >
Newsletter, resources, & links for persons with post-polio syndrome. -
Polio.net <
http://www.polio.net/ >
Information about Polio, Post-Polio Syndrome, disability support groups, polio newsgroups & chat rooms. -
Post-Polio Networking Institute <
http://www.post-polio.org/ >
GINIs mission is to enhance the lives and independence of polio survivors, ventilator users, and others living with disabilities by promoting networking and advocacy, health care research, and by coordinating international conferences. -
Post-Polio Organizations <
http://www.mossresourcenet.org/polioorg.htm >
Moss Rehabilitation Hospital resource to post polio syndrome organizations. -
Psychiatric Rehabilitation <
http://www.bu.edu/cpr/ >
Center for Psychiatric Rehabilitation is a research, service, and training organization dedicated to improving the lives of people who have psychiatric disabilities. -
Psychiatric Research Center <
http://www.dartmouth.edu/~psychrc/ >
New Hampshire-Dartmouth PRC conducts research and provides resources to aid in the development of effective services for people with dual disorders. -
Relay Service
< http://www.gsa.gov/Portal/gsa/ep/contentView.do?programId=9353&channelId=-13242&ooid=0&contentId=8136&pageTypeId=10430&contentType=GSA_BASIC&programPage=%252Fep%252Fprogram%252FgsaBasic.jsp&P=TOS >
Federal Relay Service provides Communication Assistants (CA) who act as intermediaries for telecommunications between hearing individuals and individuals who are Deaf, Hard-of-Hearing, Deaf-Blind, and/or have speech disabilities. -
Self Help for Hard of Hearing People, Inc. (SHHH) <
http://www.shhh.org/ >
Services and resources to improve the lives of those with hearing impairments through advocacy, education, and self-help. -
Spina Bifida and Children <
http://www.waisman.wisc.edu/~rowley/sb-kids/index.html >
Provides information and resources to parents who have children with Spina Bifida. -
Spina Bifida Association of America <
http://www.sbaa.org/ >
Promotes the prevention of spina bifida and to enhance the lives of all affected. -
Spina Bifida Net <
http://www.spinabifida.net/ >
Information about Spina Bifida, Hydrocephalus, physical disabilities, special needs children, latex allergies, physically challenged teens, folic acid, plus personal stories from people with Spina Bifida. -
Spinal Cord Injury Association <
http://www.spinalcord.org/ >
National Spinal Cord Injury Association provides information on resources, projects, employment, etc. -
Spinal Cord Injury Information Network <
http://www.spinalcord.uab.edu/ >
Provides resources and links for spinal cord injury information. -
Spinal Cord Injury Links <
http://www.ba-comm.com/sci/ >
Links relating to Spinal Cord Injury, SCI research and Paralysis. -
Stroke Association <
http://www.stroke.org/ >
National Stroke Association information and links to resources on stroke. -
Stuttering Foundation <
http://www.stutteringhelp.org/ >
Provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering. -
Telecommunication for the Deaf <
http://www.tdi-online.org/ >
TDI promotes equal access in telecommunications and media for people who are deaf, hard-of-hearing, or deaf-blind. -
Traumatic Brain Injury Care System <
http://main.uab.edu/tbi/show.asp?durki=9505 >
Provides information on one of 16 models TBI Centers and links to other TBI resources. -
United Cerebral Palsy <
http://www.ucp.org/ >
UCP support/advocacy group devoted to increasing the inclusion of people with Cerebral Palsy and other disabilities into every facet of society. -
Wheelchair Net <
http://www.wheelchairnet.org/index2.html >
Information on wheelchair products and services, community living.
This page was last updated Thursday, July 17, 2008
